October 7 – Trigeminal Neuralgia Awareness Day

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I can probably guess that a number of you have never heard of Trigeminal Neuralgia. Well, that changes today.

According to the Mayo Clinic’s website, Trigeminal Neuralgia is a chronic pain condition that affects the trigeminal nerve, which carries sensation from your face to your brain. If you have trigeminal neuralgia, even mild stimulation of your face — such as from brushing your teeth or putting on makeup — may trigger a jolt of excruciating pain.

They are exactly right, it causes EXCRUCIATING PAIN! How do I know? I’ve watched my sister battle this disease for the last 2 years. When she was first diagnosed, in March 2013, it was unbearable to watch. She lost over 50 pounds because she couldn’t eat or drink anything. She could only sip enough water to swallow pain medicine that didn’t work. Yet today, she is a living testimony. Yes, she is still living with this horrible disease but she is LIVING! 12115658_10200831219019806_2516033010734255112_n

There is no cure for this disease but there is HOPE and HELP. Her help come in the form of God, faith, prayer, family and friends and a doctor by the name of Dr. Robert Mericle in Nashville, TN. On December 17, 2013, he performed her MVD surgery that has since given her 85-90% relief. She is back working and has resumed her day-to-day functions. Praise the Lord.

Yes, she still has numbness on her right side, some pain that she lives with daily but she will tell anybody that she is still fighting. (It’s evident by the tattoo on her arm) 11028007_10206329171766926_8532129935363311425_n

 

Trigeminal Neuralgia is a silent disease and a person who suffers with it doesn’t look sick but that doesn’t negate the fact that they are. This is a horrible disease and if your child, spouse, friend or family member is suffering with it; SUPPORT THEM. Don’t look at them with pity, pray! Don’t tell them there is nothing wrong, there is. Don’t act like they are overreacting, they need too. This disease affects the nerve and although the doctors are quick to prescribe pain meds, they can’t stop nerve pain. Research for yourself! Be informed.

I am grateful everyday that my sister is still here with me and I will go to the ends of the earth to get her the help she needs. If you know someone who is suffering with this disease, help them. Become aware today.

Trigeminal Neuralgia is known as the suicide disease but it doesn’t have to be for your loved one! Support them! Help them! Love on them! Get them to somebody who can give them some relief! It’s available. Don’t allow anyone to tell you otherwise!

–I am my sister’s keeper!
Be blessed y’all
Lakisha

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Partying for Laquisha’s Benefit

Uly's Benefit

For those who may or may not know, I am a twin. Yes, I have a twin sister and we are identical (although we can’t see it.) However, for the last few months she has been suffering with a condition called, Trigeminal Neuralgia and for those of you who have never heard about it, let me explain. This disease is described as a chronic pain condition that affects the trigeminal nerve, which carries sensation from your face to your brain and with trigeminal neuralgia, even mild stimulation of your face — such as from brushing your teeth or putting on makeup — may trigger a jolt of excruciating pain. The pain is so debilitating that this condition has been called “The Suicide Disease” because many have taken their own lives.

Oh, but God has been keeping her and times when many would have given up; she has held on. When others have called it quits, she has called on God. Her faith has sustained her and I am in awe of her strength. Oh, her faith has withstood because God had to bring her through that in order to get her to her healing and her healing will happen at the hands of a man that God has led her too by the name of Dr. Robert Mericle of HW Neurological Institute in Nashville, TN and God, along with Dr. Mericle, will perform surgery on her on December 17, 2013.

The surgery she is scheduled to undergo is called MVD or Microvascular decompression. The surgery consists of relocating or removing blood vessels that have come into contact with her trigeminal nerve. During microvascular decompression, the doctor will make an incision behind her right ear. Then, through a small hole in your skull, he will move any arteries that are in contact with the trigeminal nerve away from the nerve, and place a pad between the nerve and the arteries. If a vein is compressing the nerve, he may remove it. After the surgery, she will remain in the hospital for 1 to 2 days and then she will have 3-6 weeks of recovery.

The surgery will take place in Nashville, TN and we will be there for at least a week. It is because of this that I am putting together a benefit party to raise money for the expenses that have been and will be incurred. Expenses such as travel and lodging, medicine and hospital stay (that’s not covered by insurance) and to assist with Laquisha’s bills until she is able to get back to work.

If you would like to donate, you can do so through paypal (ljohnson133@comcast.net) or email me at ljohnson133@comcast.net. No amount is too small. Even if you can’t donate money, your prayers are sufficent enough for us both.